As you know, FPIES blogs tend to talk a lot about poop. Just over the past 2 weeks or so, Daniel is finally having normal breastfed baby poops! This is a major step in the right direction! He now poops only 1-2 times a day, as opposed to 10-12, like before.
God has blessed us so richly with the ability to feed me my very expensive diet and to have found good probiotics. As of today, Daniel gets a 1/4 of the children's recommended dose for the probiotic we use and about 1-2 tsp of 100% grassfed beef broth. So far, things are going great, and he's still gaining weight and meeting milestones! As I said above, his poops are normal, and other than a few extra hiccups (common with adjusting to food other than breastmilk) and the normal disturbed sleep from teething, he has no symptoms that warrant alarm. I can't help but say it again that God has led us to the right path for healing! I pray daily that GAPS will be our family's answer to our digestive problems and that God has given us this diet to also help us have the chance that our next child will not have to suffer the way that Daniel has!
We tried using coconut oil for his dry skin a few days ago, and he was chewing on his hands...that night we were reminded where we have come from: screaming, gas, bloody mucousy bright yellow/green diarrhea. BUT, it didn't take him DAYS to recover, it took the 2 hours or so that he was up in the night, and once the diarrhea was over, he slept great and was his same old self the next day. Just a month ago, he would have been "off" and having symptoms for days following any kind of upset to his system. It's amazing to see how far we've come. I thank God every day for giving me such a happy baby in spite of all this mess!
Up next, we plan to finally get brave and try elk and bison, and possibly fish broth. Rotating the broths gives a better variety of nutrients and the good fats and gelatin that help heal the gut. Once we can get Daniel's gut a little more healed, we'll be able to start trying to add some veggies and fruits! I'm hoping we can find a fruit he'll tolerate before his first birthday so he can have a nice frozen, fruity treat on his birthday...if not, I have made a promise to myself to not be disappointed or mope about it. He is healing, and that is more important to me than him having a special birthday treat. He won't remember it anyway!
That's where we're at!
darn coconut oil! those episodes can be hard, sending me crashing back to what I think must be FPIES induced PTSD episodes. so glad it didnt take him long to recover and that you were able to quickly see it resolve. *sigh* did it help his skin at all?
ReplyDeleteThe coconut oil actually made his skin red and much drier. He even gets hives if we bathe him with anything that contains saponified coconut oil! We've tried shea butter and cocoa butter and jojoba oil, all with no success. We've even tried all the chemical laden stuff like aquaphor(allergic to lanolin) and vanicream(got a rash). I'm considering trying every carrier oil I can find til I at least have 1 I can use on his legs and cheeks when it gets cold and windy...I know we can't do almond because that's what brought us to the original bloody green stools. Grapeseed, Sunflower and Safflower are on my list. Maybe olive, but there's a question mark placed on that one. I've considered slathering him down in beef fat, but the dog may enjoy that too much, lol.
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